Being diagnosed with PNH (paroxysmal nocturnal hemoglobinuria) can be a life-changing
event. But as difficult as this news can be, it is important to realize you are
not alone.
Though PNH is a rare disease,1 there are others who understand what you
are going through. A worldwide network of concerned physicians, nurses, and researchers
is working hard to find new treatments and deliver the best possible care for patients
with PNH. The Internet can be a great resource in helping you to find information,
support, and a sense of community with others who share the PNH diagnosis.