The PNH Source - Site Disclaimers

The information on this website is provided as general information about the PNH Patient Registry, EXPLORE PNH Diagnostic Study, and PNHSource.Com. It is provided to you as a service of Alexion Pharmaceuticals, Inc. ("Alexion"). Alexion has made reasonable efforts to ensure that the information is complete and accurate when posted; however, Alexion makes no warranties or representations as to the completeness or accuracy of the information presented. Further, Alexion does not undertake any obligation to update any information that may change after posting.

The information contained on this site is intended for informational purposes only. It is not a substitute for actual medical care. Persons requiring diagnosis or treatment or with questions specific to a single individual are urged to contact their local healthcare provider.

Third Party Links

Links to other websites not controlled by Alexion are provided for convenience only. By providing these links, we are not endorsing or agreeing with content contained at any of the linked sites. Furthermore, the content of the linked websites is not part of the PNH Patient Registry website. We try to choose sites that are relevant. However, with the rapidly changing nature of some sites, we cannot express any opinion on their content and cannot guarantee their quality. We have no control over the linked sites and their policies. The privacy policy presented on the PNH Patient Registry site DOES NOT APPLY to any linked sites. You should contact those sites directly for information on their privacy policies, confidentiality agreements, and data collection/distribution procedures.

Alexion will not be liable for any loss or damage resulting from the use or misuse of the information in this site or any site to which it may be linked, and all users who access the PNH Patient Registry website or linked sites agree to do so at their own risk. Neither Alexion nor any other party involved in creating, producing, or delivering the PNH Patient Registry site or any site linked from or to this site shall be liable in any manner whatsoever for any damages of any nature arising out of your access to this site or any site linked from this site, or any errors or omissions in their content.

Please note that linked sites may use ìcookiesî, which are small data files that a server gives to your browser when you access a website in order to track the pages you visit on the website. Alexion cannot control the use of cookies by these linked sites. We also want you to know that when you link from the PNH Patient Registry website to another website, that site may have the ability to recognize that you have visited the PNH Patient Registry website. If you do not want any other websites to know that you have been on this website, we recommend that you do not use the links provided in our site.

Alexion respects the privacy of visitors to the PNH Patient Registry website. We will collect personally identifiable data such as your name, address, telephone number, or email address only when it is voluntarily submitted to us. This information may be used as a means to improve this site, or it might be used to provide you with information that you have requested or additional information which Alexion believes may be of interest to you. The data will not be transferred outside the company without your prior consent, but may be used within Alexion or by a company acting as an agent of Alexion for processing and mailing purposes. Alexion may also use this information within the company for performing marketing studies or for other commercial purposes for which it may receive compensation. By clicking on the button below, you consent to Alexion's use of your submitted information for these purposes.

The data collected is maintained by Alexion in an electronic database of voluntarily submitted personally identifiable information. By clicking the button below, you consent to have your submitted information maintained in such a database and authorize Alexion and its agents to exchange such information with each other or with you over the Internet or intranet systems solely for the purposes of carrying out the services described above.

While Alexion will make every reasonable effort to protect the information collected through the PNH Patient Registry website, please be aware that there is always some risk involved when submitting data over the Internet. We cannot guarantee that our website is 100% safe from illegal tampering or "hacking". Therefore, any data transmitted over the Internet may be at risk during transmission or when stored. We track the total number of visitors to our website, the number of visitors to each page of the website, and the domain names of our visitors' Internet service providers. No personally identifiable information is gathered in this process.

If at any time you wish to stop receiving emails or other communications from us, or if you have submitted personally identifiable information through our website and would like to have that information deleted from our records, please notify us by e-mail. Please note, however, that any personal information you have submitted that we have de-identified and aggregated for marketing or study purposes will not be deleted from our records. As a reminder to you when exchanging emails, any email that you send or receive on your employer's email system may be the property of your employer. Consequently, your employer may have the ability to review your personal information sent via email.

CHILDREN'S PRIVACY

Our website is not intended or designed to attract children under the age of 18.If you are under the age of 18 you must not provide your personal information. We do not collect personal information from any person we actually know is a child under the age of 18.

ANY CHANGES TO THE ALEXION INTERNET PRIVACY POLICY WILL BE PROMPTLY POSTED ON THIS PAGE. THIS PRIVACY POLICY WAS LAST UPDATED ON JUNE 15, 2006. WE MIGHT NOT NOTIFY YOU OF ANY CHANGES TO THIS INTERNET PRIVACY POLICY, YOU SHOULD CHECK THIS PAGE PERIODICALLY FOR ANY CHANGES. BY ACCESSING AND UTILIZING THIS WEBSITE, YOU AGREE THAT ALL DISPUTES AND OTHER MATTERS THAT MAY ARISE BETWEEN YOU OR YOUR REPRESENTATIVES AND ALEXION OR ITS EMPLOYEES, CONTRACTORS OR AGENTS IN CONNECTION WITH THIS WEBSITE SHALL BE GOVERNED UNDER THE LAWS OF CONNECTICUT, UNITED STATES OF AMERICA, UNDER THE EXCLUSIVE JURISDICTION OF THE COURTS OF CONNECTICUT.

All content of this website is protected by copyright laws. Unauthorized use of these materials may violate copyright, trademark, and other laws. You may not copy, modify, upload, download, post, transmit, republish, or distribute any of the content, including without limitation the programming code, contained in this website without Alexion's prior written permission except for your own personal, non-commercial purposes. Except as provided in the preceding sentence, nothing contained in this website shall be construed as granting a license in or other intellectual property rights under any patent, trademark, copyright or other intellectual property of Alexion or any third party.