Newly Diagnosed?

Get started on the right track
If you have just been diagnosed with PNH, you are probably in the midst of learning everything you can about the disease and the treatments available. Your doctor may have explained the diagnosis to you, or told you about the tests she/he has done. However, the terms your doctor uses may be unfamiliar and medical literature on the topic can be difficult to understand.

This section is intended to help you understand your new diagnosis and to lead you through some of the complicated aspects of being a PNH patient.

• Confused by all the medical jargon? Here’s a cheat sheet for what your test results really mean
• Connect with PNH patients through support networks and resources that currently exist
• If you aren’t sure what to tell family and friends, find ideas here that may help you explain your diagnosis