Living With PNH

Living with a chronic illness does not mean you can’t live a full life, filled with the people and activities you enjoy. You may have to make changes to your routine, and you may have to rely on your friends and family for support, but paroxysmal nocturnal hemoglobinuria (PNH) is a disease that you can live with.

Your doctor has probably already run many tests to reach your diagnosis. These tests measure different aspects of your blood. Click here for help interpreting your test results.

This section of the site offers lifestyle tips that may help you with your daily routine, as well as tips on how to talk to friends and family about your disease.