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Patient-Reported Symptoms of PNH

PNH symptoms can change for your patients over time, and are different from person to person.1 The list below details some of the signs and symptoms of PNH that patients may report.

Patient-reported symptoms of PNH

Quality of life problems:

  • Feeling exhausted
  • Feeling weak all over
  • Trouble starting or finishing things due to being tired
  • Needing to sleep during the day
  • Needing help doing usual activities
  • Limiting social activities due to being tired
  • Trouble taking long walks
  • Dyspnea
  • Syncope

 

  • Jaundice
  • Insomnia
  • Anorexia
  • Nausea
  • Pain associated with blood clots
  • Hemoglobinuria
  • Abdominal pain
  • Erectile dysfunction
  • Dysphagia
  • Back pain

Click here to access our downloadable Symptom Assessment Card

Next: Lactic Dehydrogenase (LDH)

1. de Castro CM. Annapolis, MD: Aplastic Anemia & MDS International Foundation; 2006.

The most sensitive and informative test to diagnose PNH.

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