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For Caregivers
Information for caregivers to help loved ones with PNH
As a caregiver, you can help support and encourage someone living with PNH, and make it easier for that person to live with this disease.
Learn from real-life PNH patients
Sometimes you need to ask for help from those close to you
PNH can drain the energy you need for everyday activities. Don't be afraid to ask for help.
Find out how Batina was able to lean on her family for support.
Staying positive as a caregiver
When you care for someone with PNH, staying positive can be difficult. Find out how Victor’s wife, Stephanie, helped him manage his disease, and also how she coped—even in trying times.
Understanding the disease is the first step in taking back control.
How to recognize PNH.
There’s no one sign, symptom, or lab result that defines PNH. Learn how to identify PNH and get the full picture.
Helping others living with PNH.
Get the support you need to help your friend or family member manage PNH.
A lot is known about PNH, and there are ways to address the disease. In fact, managing PNH is vital.
*Fictitious patient and account. Adapted from real patient stories.
“At first I was really scared. But when I met someone else who was managing her PNH, I realized I could take control.”
—Kathy*