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Facts About PNH
Take a Closer Look — And Take Control of PNH
Paroxysmal nocturnal hemoglobinuria (PNH) is a serious disease. And living with it can be scary. You may feel lost and alone.
But with the right tools and support, you can take control.
It starts with the right information
If you have been diagnosed with PNH, you probably have a lot of questions. Take a closer look at PNH.
What Is PNH?
PNH is a serious disease that destroys an important part of the blood.
What Causes PNH?
A missing protein causes red blood cells to be destroyed.
Who Gets PNH?
PNH is a rare disease, but anyone can get it at any time.
What Are the Symptoms of PNH?
Some symptoms of PNH you can see or feel, but some you can’t. And they can hurt you the most.
How can I manage PNH?
Work with your doctor to track your signs, symptoms, and lab results.
How can I find help?
You are not alone. There are people and other resources to help you take control of your disease.
*Fictitious patient and account. Adapted from real patient stories.
TRUTH: You are not alone
Although PNH is rare, support is not hard to come by. Call OneSource™ at 1.888.765.4747. A Nurse Case Manager can help answer your questions about PNH and connect you with other people who have PNH, just like you.
Finding a treatment that fits.
While PNH is serious, a lot is known about the disease and it is possible to manage PNH. Speak with your doctor to find one that’s right for you.
“At first I was really scared. But when I met someone else who was managing her PNH, I realized I could take control.”
—Kathy*