It starts with the right tools

Actively managing your PNH can go a long way. Download tools to help you take control or order them by calling OneSource™ at 1.888.765.4747.

Keep in mind what’s out of sight

With PNH, your signs and symptoms only tell part of the story. They can’t always tell you what’s going on inside your body.

Your signs and symptoms — combined with lab results — give you and your doctor the full story of your PNH.

Keep track of your signs and symptoms

The signs and symptoms of PNH can be silent and unpredictable. They affect everyone differently, and they can change from day to day.

Even when you can’t see or feel symptoms, you can still be at risk of serious health problems.

When you track your signs and symptoms over time, you and your doctor can be more aware of changes in your health. So, take note of how you’re feeling and share it with your doctor.

There are a number of important lab tests that can help tell you and your doctor how your PNH is progressing.

And remember, always contact your doctor if you have any sudden changes to your health.

PNH can be life threatening, but the disease is manageable and there is a lot you can do. Understanding the disease is the first step toward taking control.

Next: Building your healthcare team.