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Managing Your PNH
Managing Your PNH
There is hope
PNH can be life threatening, but PNH is manageable and there is a lot you can do. Understanding the disease is the first step toward taking control.
Managing PNH is vital, and it is important to address PNH early—and aggressively. With the right approach, people with PNH can live long, full lives.
By working closely with your doctor, you may be able to keep the risks of PNH at bay.
Take a closer look at how you and your doctor can manage your PNH. It just might change the way you see PNH.
How is PNH diagnosed?
The symptoms of PNH don’t always tell you what’s going on inside your body.
How is PNH managed?
Addressing PNH early and aggressively is the best way to take control of PNH.
Why does PNH need to be managed?
PNH is constant and progressive. This means the disease can get worse over time, which can increase your risk of serious health problems.
MYTH: My PNH is only bad when I don’t feel well
With PNH, you can have serious health problems even if you feel fine. Be aware of how you’re feeling and let your doctor know. This will help you both manage your PNH in the best way possible.
TRUTH: You are not alone
Although PNH is rare, support is not hard to come by. Call OneSource™ at 1.888.765.4747. A Nurse Case Manager can help answer your questions about PNH and connect you with other people who have PNH, just like you.
