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Talking With Your Doctor
Talking With Your Doctor
It’s easier to find success with PNH when you know how to speak with your doctor. When you talk about how you’re feeling, be sure to give your doctor the whole story.
What: Describe all of your symptoms, even if you don’t think they’re related to PNH.
When: When did they start? Do you feel them all the time or just in certain situations?
Where: Show your doctor where on your body you’re feeling the symptoms the most.
How much: Use a scale of 1 to 5 to describe how intense your symptoms are.
Giving details about your symptoms will help both you and your doctor get the most of out of each visit.
Understanding your lab results
To understand your lab results, you don’t need to learn another language.
Remember, your doctor is there to help you. So don’t be afraid to ask questions!
Here are a few questions to help you get started:
“What does this lab test mean?”
“Are the results normal?”
“What does it mean if my loved one’s results are above/below normal?”
“Is there anything we can do to get them within a normal range?”
Speaking openly can help you and your doctor better manage your PNH.
Use this discussion guide to record information from your doctor’s visit and to review with your loved ones.
Download a Lab Tracker and a PNH Symptom Checkup Chart. They’ll help you and your doctor watch your signs and symptoms and your lab test results, so you can get more out of each doctor visit.
Available to people with PNH and their caregivers.
Call with no obligation:
1.888.765.4747
Monday - Friday
8:30 AM to 5 PM