Learn about PNH
Download the PNH Disease Brochure for Physicians to learn more about disease severity, pathophysiology, clinical manifestations, diagnosis, and high-risk groups for PNH.
Identify high-risk patients for PNH
Download a copy of the International Clinical Cytometry Society (ICCS) Guidelines on accurate identification and monitoring of PNH cell populations. Guidelines include best practices for performing high-sensitivity flow cytometry for PNH and recommended high-risk groups for monitoring.
Download the Patient Subgroups Pocket Card that provides information about higher-risk groups recommended by the ICCS and International PNH Interest Group (IPIG) for PNH testing.
Download the Clinical Diagnostic Cheat Sheet for more information about performing a full clinical assessment to diagnose PNH.
Download a toolkit for identifying patient populations at high risk for PNH. The Patient Subgroups with High Disease Prevalence Tool provides specific information about each of the high-risk patient groups for PNH.
Download Lab Cards that list diagnostic labs in your region performing high-sensitivity flow cytometry for PNH:
Download sample lab reports showing proper reporting of results from a high-sensitivity flow cytometry test on the peripheral blood of a patient positive for PNH clones.
Care for PNH
Download clinical case studies in PNH
Learn more about the PNH Registry
Download the PNH Registry Brochure to learn more about the PNH Registry, an international, observational, noninterventional study collecting data on patients with PNH to enhance global understanding of this ultra-rare disease.
Download patient resources
Help your patients keep track of their symptoms and lab results. Download a symptoms and LDH tracker tool that your patients can use to discuss their ongoing progress.