PNH Registry

PNH Registry

The PNH Registry is an international, observational, and noninterventional study collecting safety, effectiveness, and QoL data on patients with PNH.

Unite with a global community of physicians in contributing to the largest, most comprehensive PNH patient registry. Those eligible for enrollment include all patients who have been newly or previously diagnosed with PNH or have evidence of positive PNH cells.

  • All physicians managing patients with PNH, regardless of treatment approach, are encouraged to participate

Contribute to treatment objectives, practice patterns, and best practices.

  • An invaluable opportunity to increase understanding of the natural history of PNH and the safety and efficacy of treatments

Support scientific collaboration in the PNH community.

  • Offers the international community greater insight into an uncommon disease with potentially devastating consequences12

Enroll your patients in the PNH Registry today.

Please contact the PNH Registry hotline:

Telephone: 1.215.616.3558

PNH Medical Expert PNH Medical Expert

Do you have any questions about PNH? Contact an Alexion Nurse Case Manager for more information.

OneSource Treatment Support

Contact a nurse case manager from OneSource™ who can provide information and useful tools to help you care for your patient with PNH.

Talk to Someone

There is a community of experts who can help you in caring for your patient with PNH. Find the right person to assist you in providing your patients with PNH with the best care possible.

References: 12.Rother RP, Bell L, Hillmen P, et al. The clinical sequelae of intravascular hemolysis and extracellular plasma hemoglobin: a novel mechanism of human disease. JAMA. 2005;293:1653-1662. 16: Hill A, Kelly R, Hillmen P. Thrombosis in paroxysmal nocturnal hemoglobinuria. Blood. 2013;121:4985-4996.