Stay Informed. Take Control of PNH.

PNH stands for paroxysmal nocturnal hemoglobinuria. It is a serious and unpredictable disease.

Use this website to take a closer look at PNH. Find out how it works — and what you can do about it. It just might change the way you see PNH.

Taking a closer look at PNH

There is no one sign, symptom, or lab result that defines PNH. In addition to your lab test results, your doctor will consider all your signs and symptoms.

Start with the right information

A lot is known about PNH, and treatments for PNH are available. Addressing PNH early and aggressively is the best way to take control.

A serious but manageable disease

Understanding PNH is the first step toward taking control.

CameraReal-life PNH Patients

Learn about Victor and Batina's personal experiences with PNH.

CalendarCommunity Events

Look for upcoming PNH events in your area.

One Source
This support program provides education and support for people living with PNH and their caregivers.
Learn More